Understanding the Support and Information Needs of Family Members after Acquired Brain Injury: A Systematic Review

The aim of this systematic review was to (a) identify the specific information and support needs of family members caring for ABI survivors and (b) assess the effectiveness of current support systems and resources available. A comprehensive search of the literature was carried out, focusing on studies that were published between the years 2000 and 2025. Seventeen studies met the inclusion criteria. The review employed a narrative synthesis approach to collate findings across papers. The analysis identified five key themes: ABI Knowledge, The Strain of Unsupported Transitions, Emotional and Financial Cost, ABI Support Groups, and Supporting Social Connectedness. The findings indicate significant gaps in current systems of support and information for families of individuals with ABI. Inconsistencies in the delivery of ABI-related information during the acute stage create stress among family members. The post-acute stage presents challenges with instrumental support and insufficient emotional and peer support. This review demonstrates the importance of a more flexible, person-centered approach in supporting families of ABI relatives. Providing tailored interventions and information, with consistent social welfare support are vital in improving the quality of life for both caregivers and ABI survivors.