TY - JOUR
T1 - Understanding how volunteer companionship impacts those during the end of life
T2 - A realist evaluation
AU - Downey, John
AU - Cooper, Susan
AU - Bassett, Lynn
AU - Dubeibe Fong, Alejandra
AU - Doherty, Margaret
AU - Cornwall, Jon
N1 - Publisher Copyright:
© 2024 The Author(s). Published with license by Taylor & Francis Group, LLC.
PY - 2024/4/4
Y1 - 2024/4/4
N2 - Volunteers are a popular unpaid support role in end of life care yet how accompaniment influences the dying is underdeveloped. This study examined how companionship works, for whom, in what circumstances and why. Initial realist ideas were developed through participant observation (14 months), document analysis, and realist interviews with companionship trainers (n = 6). Theory testing involved volunteer interviews (n = 7), accounts from the dying, proxy accounts for the dying, and written reflections from companionship training. Companionship helps people live well until they die, prepare for death, and experience a good death. Four areas of volunteering explain these outcomes namely a loving friend, a holistic presence, a non-judgmental intermediary, and wrap around care. The four areas activate mechanisms related to reminiscing, preserving dignity/personhood, and easing suffering, contingent on specific contexts. The findings unpack how volunteering exerts its influence and what contextual factors facilitate outcomes, advancing the knowledge in this area.
AB - Volunteers are a popular unpaid support role in end of life care yet how accompaniment influences the dying is underdeveloped. This study examined how companionship works, for whom, in what circumstances and why. Initial realist ideas were developed through participant observation (14 months), document analysis, and realist interviews with companionship trainers (n = 6). Theory testing involved volunteer interviews (n = 7), accounts from the dying, proxy accounts for the dying, and written reflections from companionship training. Companionship helps people live well until they die, prepare for death, and experience a good death. Four areas of volunteering explain these outcomes namely a loving friend, a holistic presence, a non-judgmental intermediary, and wrap around care. The four areas activate mechanisms related to reminiscing, preserving dignity/personhood, and easing suffering, contingent on specific contexts. The findings unpack how volunteering exerts its influence and what contextual factors facilitate outcomes, advancing the knowledge in this area.
UR - http://www.scopus.com/inward/record.url?scp=85189977371&partnerID=8YFLogxK
UR - https://pearl.plymouth.ac.uk/context/nm-research/article/1558/viewcontent/Understanding_how_volunteer_companionship_impacts_those_during_the_end_of_life_A_realist_evaluation.pdf
U2 - 10.1080/07481187.2024.2336006
DO - 10.1080/07481187.2024.2336006
M3 - Article
AN - SCOPUS:85189977371
SN - 0748-1187
JO - Death Studies
JF - Death Studies
ER -