PO048 Sudep and epilepsy risk – epsmon an e-health assessment tool

Brendan Mclean, Rohit Shankar, Craig Newman, Jane Hanna, Alex Oxland, Caryn Jory

Research output: Contribution to journalArticlepeer-review

Abstract

Sudden unexpected death in epilepsy (SUDEP) is possibly the most common cause of death as a result of complications from epilepsy. The need to educate and regularly review risk for all patients with epilepsy is paramount, but rarely delivered in actual clinical practice. Evidence suggests that education around SUDEP and modifiable risk variables translate into better self-management of epilepsy. We developed and implement an eHealth solution to support education and self-management of risks, in epilepsy. We undertook an innovation pathways approach, including problem identification, feasibility assessment, design, implementation and marketing. People with epilepsy were provided a smart-phone based App (EpSMon – Epilepsy Self-Monitor), which translates the clinical risk assessment tool into an educational and self-monitoring platform, for the self-management of epilepsy. Results include the success of the marketing campaign, with an estimated reach of est. 38 million people. EpSMon has proved a success in academic and clinical circles, attracting numerous awards. A trial of the App in use in the UK, and the success of the marketing strategy, pointed to necessary changes to the model of delivery and marketing. The redesigned version will be launched worldwide in 2017, with a US version soon to be available.
Original languageEnglish
Pages (from-to)A24.3-A24
JournalJournal of Neurology Neurosurgery & Psychiatry
Volume88
Issue numberSuppl 1
DOIs
Publication statusPublished - 1 Dec 2017
EventAssociation of British Neurologists (ABN) Annual Meeting 2017 - Liverpool, United Kingdom
Duration: 3 May 20175 May 2017

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