TY - JOUR
T1 - Patient Experiences and Prerequisites of Collaboration as Partners in Person-Centred Care
T2 - An Interview Study
AU - Rosenlund, Lena
AU - Jakobsson, Sofie
AU - Lloyd, Helen
AU - Diffner, Anna
AU - Lundgren-Nilsson, Åsa
AU - Dencker, Anna
N1 - Publisher Copyright:
© 2024 The Author(s). Nursing Open published by John Wiley & Sons Ltd.
PY - 2025/1
Y1 - 2025/1
N2 - Aim: To explore what characterises communication and collaboration within a patient and professional partnership in outpatient care settings garnered from the experiences of persons living with long-term conditions. Design: A qualitative descriptive study design. Methods: Semi-structured individual interviews were conducted with 15 persons with long-term condition/s who experienced outpatient treatment or follow-up care. Data were explored through inductive thematic analysis. The COREQ checklist was followed. Results: The analysis revealed five themes: adapting and self-managing in daily life, handling and carrying information, building trust and continuity, acting in a flexible and transparent dialogue and sharing the way forward. The participants described their personal and informal resources, and their actions to take control and manage health and well-being. A person-centred approach, sharing of knowledge and communication skills enabled the development of trust in the healthcare providers and their treatment and care. Communication was facilitated through availability, shared documentation, continuity and coordination of care. Collaboration was described as a flexible dialogue with mutual trust and transparency, shared learning and problem-solving. Sharing the way forward was a process, alongside and important to the life-changing process to cope with the illness. Conclusions: Prerequisites for the collaboration in outpatient settings were availability, continuity and a healthcare system that acknowledged, empowered and adapted to patients' health status, resources, everyday life and a patient's coping processes to manage their disease. For a co-created, person-centred outpatient care, it is important to acknowledge and/or collaborate with the patient's team of other healthcare providers and informal caregivers. Relevance to Clinical Practice: The study contributes to better understanding of patient preferences and prerequisites how to work in partnership and how to develop future services and person-centred care for persons living with long-term conditions. Patient and Public Contribution: Patients included in this study were participants during the data collection process.
AB - Aim: To explore what characterises communication and collaboration within a patient and professional partnership in outpatient care settings garnered from the experiences of persons living with long-term conditions. Design: A qualitative descriptive study design. Methods: Semi-structured individual interviews were conducted with 15 persons with long-term condition/s who experienced outpatient treatment or follow-up care. Data were explored through inductive thematic analysis. The COREQ checklist was followed. Results: The analysis revealed five themes: adapting and self-managing in daily life, handling and carrying information, building trust and continuity, acting in a flexible and transparent dialogue and sharing the way forward. The participants described their personal and informal resources, and their actions to take control and manage health and well-being. A person-centred approach, sharing of knowledge and communication skills enabled the development of trust in the healthcare providers and their treatment and care. Communication was facilitated through availability, shared documentation, continuity and coordination of care. Collaboration was described as a flexible dialogue with mutual trust and transparency, shared learning and problem-solving. Sharing the way forward was a process, alongside and important to the life-changing process to cope with the illness. Conclusions: Prerequisites for the collaboration in outpatient settings were availability, continuity and a healthcare system that acknowledged, empowered and adapted to patients' health status, resources, everyday life and a patient's coping processes to manage their disease. For a co-created, person-centred outpatient care, it is important to acknowledge and/or collaborate with the patient's team of other healthcare providers and informal caregivers. Relevance to Clinical Practice: The study contributes to better understanding of patient preferences and prerequisites how to work in partnership and how to develop future services and person-centred care for persons living with long-term conditions. Patient and Public Contribution: Patients included in this study were participants during the data collection process.
KW - collaboration
KW - communication
KW - long-term condition
KW - patient experience
KW - patient–professional partnership
KW - person-centred care
KW - person-centredness
UR - http://www.scopus.com/inward/record.url?scp=85213315623&partnerID=8YFLogxK
UR - https://pearl.plymouth.ac.uk/context/psy-research/article/2092/viewcontent/Nursing_Open___2024___Rosenlund___Patient_Experiences_and_Prerequisites_of_Collaboration_as_Partners_in_Person_Centred_Care.pdf
U2 - 10.1002/nop2.70133
DO - 10.1002/nop2.70133
M3 - Article
C2 - 39726374
AN - SCOPUS:85213315623
SN - 2054-1058
VL - 12
JO - Nursing Open
JF - Nursing Open
IS - 1
M1 - e70133
ER -