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Organising care for complexity: a pathways model for adult community intellectual disability services

  • Rohit Shankar
  • , Indermeet Sawhney
  • , Samuel Tromans
  • , Bhathika Perera
  • , Laura Korb
  • , Rory Sheehan
  • , Heather Hanna
  • , Richard Laugharne
  • , Niall O'Kane
  • , Jana DeVilliers
  • , Ganesan Rajagopal
  • , Lance Watkins
  • , Jane Mccarthy
  • , Kiran Purandare
  • , Regi Alexander
  • , Ashok Roy
  • , Asif Zia
  • , Satheesh Gangadharan
  • , Angela Hassiotis
  • Hertfordshire Partnership University NHS Foundation Trust
  • Royal College of Psychiatrists
  • Leicestershire Partnership NHS Trust
  • University of Leicester
  • Barnet, Enfield and Haringey Mental Health NHS Trust
  • University College London
  • North East London NHS Foundation Trust
  • Enfield
  • Haringey Mental Health NHS Trust
  • King's College London
  • Southern Health and Social care Trust, Belfast, UK
  • Camden and Islington NHS Foundation Trust
  • Sussex Partnership NHS Foundation Trust
  • East London NHS Foundation Trust
  • Central and North West London NHS Foundation Trust
  • The Kingswood Centre
  • University of Hertfordshire
  • Oxford Textbook of Psychiatry of Intellectual Disability
  • Coventry and Warwickshire Partnership NHS Trust
  • Cornwall Partnership NHS Foundation Trust
  • University Hospitals Coventry and Warwickshire NHS Trust

Research output: Contribution to journalReview articlepeer-review

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Abstract

Adult community intellectual disability services in the United Kingdom (UK) are required to deliver specialist, evidence-based care for a variety of conditions while minimising restrictive practices and reliance on inpatient provision. Care pathway models have emerged as a potential mechanism to reconcile these aims yet remain under-used in care philosophies in intellectual disabilities. We propose a generalisable pathways model for community intellectual disability services and examine its implications for policy, clinical practice, and research. The model integrates care navigation, proportionate specialist input, and defined clinical condition care including behaviours that challenge, mental and physical health, forensics, neurodevelopmental conditions, epilepsy, and dementia within a community-based service architecture. It considers recent focus on digitalsation, prevention, workforce and practice innovation. The model aligns with contemporary policy priorities. We argue that pathway-based care delivery provides a pragmatic and ethically grounded framework for organising services. It supports consistency, integration, and preventative care while reducing reliance on reactive risk-based responses. By synthesising service design principles, core pathway functions, and system interfaces, this paper offers a coherent model for contemporary community intellectual disability services. Further empirical evaluation is required to assess the impact of care pathways on outcomes, patient experience, and cost-effectiveness.
Original languageEnglish
JournalInternational Review of Psychiatry
DOIs
Publication statusPublished - 2 Feb 2026

ASJC Scopus subject areas

  • Psychiatry and Mental Health

Keywords

  • Care pathways
  • mental health services
  • neurodevelopmental disorders
  • outcomes
  • service pathways

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