@inproceedings{78012ecb1be542539db3aef1bc385074,
title = "Mapping Patients' Online Record Access Worldwide: Preliminary Results from an International Survey of Healthcare Experts",
abstract = "While research on the effects of patient access to health records is increasing, a basic understanding of the spread of patient-accessible electronic health records worldwide is lacking. In this survey of healthcare experts with professional and personal experience from 29 countries, we explored the state of patient online record access (ORA). We asked participants whether ORA exists in their country and which information is available through it. Experts in all polled countries reported having some national access to health records, with 6 (21%) countries providing exclusively paper-based records and 23 (79%) countries having ORA. Overview of test/lab results and prescription/medication lists were the most commonly available information. Free-text clinical notes were accessible in less than half of the surveyed countries (12, 41%). We will continue to map the state of patient ORA, focusing on traditionally underrepresented countries.",
keywords = "EHR, electronic health record, online record access, ORA, PAEHR, Patient accessible electronic health records, patient portal, Medical Records Systems, Computerized, Humans, Electronics, Health Records, Personal, Health Facilities, Records",
author = "Anna Kharko and Charlotte Blease and Monika Johansen and Anne Moen and Isabella Scandurra and Brian McMillan and Maria H{\"a}gglund",
note = "Publisher Copyright: {\textcopyright} 2024 International Medical Informatics Association (IMIA) and IOS Press.; 19th World Congress on Medical and Health Informatics, MedInfo 2023 ; Conference date: 08-07-2023 Through 12-07-2023",
year = "2024",
month = jan,
day = "25",
doi = "10.3233/SHTI230938",
language = "English",
series = "Studies in Health Technology and Informatics",
publisher = "IOS Press BV",
pages = "114--118",
editor = "Jen Bichel-Findlay and Paula Otero and Philip Scott and Elaine Huesing",
booktitle = "MEDINFO 2023 - The Future is Accessible",
address = "Netherlands",
}