Mapping Patients' Online Record Access Worldwide: Preliminary Results from an International Survey of Healthcare Experts

Anna Kharko*, Charlotte Blease, Monika Johansen, Anne Moen, Isabella Scandurra, Brian McMillan, Maria Hägglund

*Corresponding author for this work

Research output: Chapter in Book/Report/Conference proceedingConference proceedings published in a bookpeer-review

Abstract

While research on the effects of patient access to health records is increasing, a basic understanding of the spread of patient-accessible electronic health records worldwide is lacking. In this survey of healthcare experts with professional and personal experience from 29 countries, we explored the state of patient online record access (ORA). We asked participants whether ORA exists in their country and which information is available through it. Experts in all polled countries reported having some national access to health records, with 6 (21%) countries providing exclusively paper-based records and 23 (79%) countries having ORA. Overview of test/lab results and prescription/medication lists were the most commonly available information. Free-text clinical notes were accessible in less than half of the surveyed countries (12, 41%). We will continue to map the state of patient ORA, focusing on traditionally underrepresented countries.

Original languageEnglish
Title of host publicationMEDINFO 2023 - The Future is Accessible
Subtitle of host publicationProceedings of the 19th World Congress on Medical and Health Informatics
EditorsJen Bichel-Findlay, Paula Otero, Philip Scott, Elaine Huesing
PublisherIOS Press BV
Pages114-118
Number of pages5
ISBN (Electronic)9781643684567
DOIs
Publication statusPublished - 25 Jan 2024
Event19th World Congress on Medical and Health Informatics, MedInfo 2023 - Sydney, Australia
Duration: 8 Jul 202312 Jul 2023

Publication series

NameStudies in Health Technology and Informatics
Volume310
ISSN (Print)0926-9630
ISSN (Electronic)1879-8365

Conference

Conference19th World Congress on Medical and Health Informatics, MedInfo 2023
Country/TerritoryAustralia
CitySydney
Period8/07/2312/07/23

ASJC Scopus subject areas

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management

Keywords

  • EHR
  • electronic health record
  • online record access
  • ORA
  • PAEHR
  • Patient accessible electronic health records
  • patient portal
  • Medical Records Systems, Computerized
  • Humans
  • Electronics
  • Health Records, Personal
  • Health Facilities
  • Records

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