Managing fatigue after cancer treatment: development of RESTORE, a web‐based resource to support self‐management

C. Foster; L. Calman; C. Grimmett; M. Breckons; P. Cotterell; L. Yardley; J. Joseph; S. Hughes; R. Jones; C. Leonidou; J. Armes; L. Batehup; J. Corner; D. Fenlon; E. Lennan; C. Morris; A. Neylon; E. Ream; L. Turner; A. Richardson

doi:10.1002/pon.3747

Managing fatigue after cancer treatment: development of RESTORE, a web‐based resource to support self‐management

C. Foster^*, L. Calman, C. Grimmett, M. Breckons, P. Cotterell, L. Yardley, J. Joseph, S. Hughes, R. Jones, C. Leonidou, J. Armes, L. Batehup, J. Corner, D. Fenlon, E. Lennan, C. Morris, A. Neylon, E. Ream, L. Turner, A. Richardson

^*Corresponding author for this work

School of Nursing and Midwifery

Research output: Contribution to journal › Article › peer-review

Abstract

AbstractObjectiveThe aim of this study is to co‐create an evidence‐based and theoretically informed web‐based intervention (RESTORE) designed to enhance self‐efficacy to live with cancer‐related fatigue (CRF) following primary cancer treatment.MethodsA nine‐step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web‐based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention.ResultsKey stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3–5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment.ConclusionsIt is feasible to systematically ‘co‐create’ an evidence‐based and theory‐driven web‐based self‐management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web‐based intervention to support self‐efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted. Copyright © 2015 John Wiley & Sons, Ltd.

Original language	English
Pages (from-to)	940-949
Number of pages	0
Journal	Psycho-Oncology
Volume	24
Issue number	8
Early online date	2 Feb 2015
DOIs	https://doi.org/10.1002/pon.3747
Publication status	Published - Aug 2015

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Foster, C., Calman, L., Grimmett, C., Breckons, M., Cotterell, P., Yardley, L., Joseph, J., Hughes, S., Jones, R., Leonidou, C., Armes, J., Batehup, L., Corner, J., Fenlon, D., Lennan, E., Morris, C., Neylon, A., Ream, E., Turner, L., & Richardson, A. (2015). Managing fatigue after cancer treatment: development of RESTORE, a web‐based resource to support self‐management. Psycho-Oncology, 24(8), 940-949. https://doi.org/10.1002/pon.3747

@article{d1245abd1efb4a4bb9c0b8c90d14a91e,

title = "Managing fatigue after cancer treatment: development of RESTORE, a web‐based resource to support self‐management",

abstract = "AbstractObjectiveThe aim of this study is to co‐create an evidence‐based and theoretically informed web‐based intervention (RESTORE) designed to enhance self‐efficacy to live with cancer‐related fatigue (CRF) following primary cancer treatment.MethodsA nine‐step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web‐based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention.ResultsKey stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3–5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment.ConclusionsIt is feasible to systematically {\textquoteleft}co‐create{\textquoteright} an evidence‐based and theory‐driven web‐based self‐management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web‐based intervention to support self‐efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted. Copyright {\textcopyright} 2015 John Wiley & Sons, Ltd.",

author = "C. Foster and L. Calman and C. Grimmett and M. Breckons and P. Cotterell and L. Yardley and J. Joseph and S. Hughes and R. Jones and C. Leonidou and J. Armes and L. Batehup and J. Corner and D. Fenlon and E. Lennan and C. Morris and A. Neylon and E. Ream and L. Turner and A. Richardson",

year = "2015",

month = aug,

doi = "10.1002/pon.3747",

language = "English",

volume = "24",

pages = "940--949",

journal = "Psycho-Oncology",

issn = "1057-9249",

publisher = "John Wiley and Sons Ltd",

number = "8",

}

Foster, C, Calman, L, Grimmett, C, Breckons, M, Cotterell, P, Yardley, L, Joseph, J, Hughes, S, Jones, R, Leonidou, C, Armes, J, Batehup, L, Corner, J, Fenlon, D, Lennan, E, Morris, C, Neylon, A, Ream, E, Turner, L & Richardson, A 2015, 'Managing fatigue after cancer treatment: development of RESTORE, a web‐based resource to support self‐management', Psycho-Oncology, vol. 24, no. 8, pp. 940-949. https://doi.org/10.1002/pon.3747

TY - JOUR

T1 - Managing fatigue after cancer treatment: development of RESTORE, a web‐based resource to support self‐management

AU - Foster, C.

AU - Calman, L.

AU - Grimmett, C.

AU - Breckons, M.

AU - Cotterell, P.

AU - Yardley, L.

AU - Joseph, J.

AU - Hughes, S.

AU - Jones, R.

AU - Leonidou, C.

AU - Armes, J.

AU - Batehup, L.

AU - Corner, J.

AU - Fenlon, D.

AU - Lennan, E.

AU - Morris, C.

AU - Neylon, A.

AU - Ream, E.

AU - Turner, L.

AU - Richardson, A.

PY - 2015/8

Y1 - 2015/8

N2 - AbstractObjectiveThe aim of this study is to co‐create an evidence‐based and theoretically informed web‐based intervention (RESTORE) designed to enhance self‐efficacy to live with cancer‐related fatigue (CRF) following primary cancer treatment.MethodsA nine‐step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web‐based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention.ResultsKey stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3–5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment.ConclusionsIt is feasible to systematically ‘co‐create’ an evidence‐based and theory‐driven web‐based self‐management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web‐based intervention to support self‐efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted. Copyright © 2015 John Wiley & Sons, Ltd.

AB - AbstractObjectiveThe aim of this study is to co‐create an evidence‐based and theoretically informed web‐based intervention (RESTORE) designed to enhance self‐efficacy to live with cancer‐related fatigue (CRF) following primary cancer treatment.MethodsA nine‐step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web‐based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention.ResultsKey stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3–5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment.ConclusionsIt is feasible to systematically ‘co‐create’ an evidence‐based and theory‐driven web‐based self‐management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web‐based intervention to support self‐efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted. Copyright © 2015 John Wiley & Sons, Ltd.

U2 - 10.1002/pon.3747

DO - 10.1002/pon.3747

M3 - Article

SN - 1057-9249

VL - 24

SP - 940

EP - 949

JO - Psycho-Oncology

JF - Psycho-Oncology

IS - 8

ER -

Managing fatigue after cancer treatment: development of RESTORE, a web‐based resource to support self‐management

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