Key experiences of primary social groups in Unspecified Kidney Donation

Alexis Clarke; Annie Mitchell; Lynsey Williams; Adam Kirk; Tim Auburn; Linnie Price; Jan Shorrock; Lucy Chester

doi:10.1111/jorc.12276

Key experiences of primary social groups in Unspecified Kidney Donation

Alexis Clarke^*, Annie Mitchell, Lynsey Williams, Adam Kirk, Tim Auburn, Linnie Price, Jan Shorrock, Lucy Chester

^*Corresponding author for this work

Faculty of Health

Research output: Contribution to journal › Article › peer-review

Abstract

SUMMARYBackgroundThe role of family members in directed kidney donation is well documented in the literature from both a physiological and psychosocial perspective. The experiences of families, or primary social groups (PSGs), where one member considers donating a kidney via unspecified altruistic kidney donation route (UKD) is poorly understood. This is pertinent as lack of family support has been identified as a potential contributor to donation withdrawal.ObjectivesThis study aimed to explore the relevant psychosocial factors underpinning completed and uncompleted donations.DesignA qualitative study using semi–structured interviews.ParticipantsQualitative interviews were conducted in the United Kingdom with 35 individuals comprising of: 11 donors who donated their kidney altruistically and 8 of their PSG members, and 11 donors who withdrew and 5 of their PSG members.ApproachInterviews were transcribed verbatim and analysed using Framework Analysis.ResultsTwo major themes were identified: (1) Supportability, which contained experiences fundamental to proceeding to donate, underpinned by four subthemes Acceptability, Awareness and Information, Family Risk and Ambivalence;(2) Seeking Resolution, contained discussions of experiences following either withdrawal from or completion of the donation, and comprised two sub–themes, Unfinished Business and Resolve.ConclusionsThere are key differences in the experiences between those who completed their donation and those who withdrew. It is clear from this study that UKD operates within a PSG's social framework. Clinical implications suggest interventions at the level of addressing ambivalence within the PSG and the need for promotion of better psychosocial outcomes both following completion or withdrawal from donation.

Original language	English
Pages (from-to)	171-184
Number of pages	0
Journal	Journal of Renal Care
Volume	45
Issue number	3
Early online date	3 Jun 2019
DOIs	https://doi.org/10.1111/jorc.12276
Publication status	Published - Sept 2019

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10.1111/jorc.12276

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@article{4f27f30906f84e459c1d8931e9ca54c3,

title = "Key experiences of primary social groups in Unspecified Kidney Donation",

abstract = "SUMMARYBackgroundThe role of family members in directed kidney donation is well documented in the literature from both a physiological and psychosocial perspective. The experiences of families, or primary social groups (PSGs), where one member considers donating a kidney via unspecified altruistic kidney donation route (UKD) is poorly understood. This is pertinent as lack of family support has been identified as a potential contributor to donation withdrawal.ObjectivesThis study aimed to explore the relevant psychosocial factors underpinning completed and uncompleted donations.DesignA qualitative study using semi–structured interviews.ParticipantsQualitative interviews were conducted in the United Kingdom with 35 individuals comprising of: 11 donors who donated their kidney altruistically and 8 of their PSG members, and 11 donors who withdrew and 5 of their PSG members.ApproachInterviews were transcribed verbatim and analysed using Framework Analysis.ResultsTwo major themes were identified: (1) Supportability, which contained experiences fundamental to proceeding to donate, underpinned by four subthemes Acceptability, Awareness and Information, Family Risk and Ambivalence;(2) Seeking Resolution, contained discussions of experiences following either withdrawal from or completion of the donation, and comprised two sub–themes, Unfinished Business and Resolve.ConclusionsThere are key differences in the experiences between those who completed their donation and those who withdrew. It is clear from this study that UKD operates within a PSG's social framework. Clinical implications suggest interventions at the level of addressing ambivalence within the PSG and the need for promotion of better psychosocial outcomes both following completion or withdrawal from donation.",

author = "Alexis Clarke and Annie Mitchell and Lynsey Williams and Adam Kirk and Tim Auburn and Linnie Price and Jan Shorrock and Lucy Chester",

year = "2019",

month = sep,

doi = "10.1111/jorc.12276",

language = "English",

volume = "45",

pages = "171--184",

journal = "Journal of Renal Care",

issn = "1755-6678",

publisher = "Wiley-Blackwell",

number = "3",

}

TY - JOUR

T1 - Key experiences of primary social groups in Unspecified Kidney Donation

AU - Clarke, Alexis

AU - Mitchell, Annie

AU - Williams, Lynsey

AU - Kirk, Adam

AU - Auburn, Tim

AU - Price, Linnie

AU - Shorrock, Jan

AU - Chester, Lucy

PY - 2019/9

Y1 - 2019/9

N2 - SUMMARYBackgroundThe role of family members in directed kidney donation is well documented in the literature from both a physiological and psychosocial perspective. The experiences of families, or primary social groups (PSGs), where one member considers donating a kidney via unspecified altruistic kidney donation route (UKD) is poorly understood. This is pertinent as lack of family support has been identified as a potential contributor to donation withdrawal.ObjectivesThis study aimed to explore the relevant psychosocial factors underpinning completed and uncompleted donations.DesignA qualitative study using semi–structured interviews.ParticipantsQualitative interviews were conducted in the United Kingdom with 35 individuals comprising of: 11 donors who donated their kidney altruistically and 8 of their PSG members, and 11 donors who withdrew and 5 of their PSG members.ApproachInterviews were transcribed verbatim and analysed using Framework Analysis.ResultsTwo major themes were identified: (1) Supportability, which contained experiences fundamental to proceeding to donate, underpinned by four subthemes Acceptability, Awareness and Information, Family Risk and Ambivalence;(2) Seeking Resolution, contained discussions of experiences following either withdrawal from or completion of the donation, and comprised two sub–themes, Unfinished Business and Resolve.ConclusionsThere are key differences in the experiences between those who completed their donation and those who withdrew. It is clear from this study that UKD operates within a PSG's social framework. Clinical implications suggest interventions at the level of addressing ambivalence within the PSG and the need for promotion of better psychosocial outcomes both following completion or withdrawal from donation.

AB - SUMMARYBackgroundThe role of family members in directed kidney donation is well documented in the literature from both a physiological and psychosocial perspective. The experiences of families, or primary social groups (PSGs), where one member considers donating a kidney via unspecified altruistic kidney donation route (UKD) is poorly understood. This is pertinent as lack of family support has been identified as a potential contributor to donation withdrawal.ObjectivesThis study aimed to explore the relevant psychosocial factors underpinning completed and uncompleted donations.DesignA qualitative study using semi–structured interviews.ParticipantsQualitative interviews were conducted in the United Kingdom with 35 individuals comprising of: 11 donors who donated their kidney altruistically and 8 of their PSG members, and 11 donors who withdrew and 5 of their PSG members.ApproachInterviews were transcribed verbatim and analysed using Framework Analysis.ResultsTwo major themes were identified: (1) Supportability, which contained experiences fundamental to proceeding to donate, underpinned by four subthemes Acceptability, Awareness and Information, Family Risk and Ambivalence;(2) Seeking Resolution, contained discussions of experiences following either withdrawal from or completion of the donation, and comprised two sub–themes, Unfinished Business and Resolve.ConclusionsThere are key differences in the experiences between those who completed their donation and those who withdrew. It is clear from this study that UKD operates within a PSG's social framework. Clinical implications suggest interventions at the level of addressing ambivalence within the PSG and the need for promotion of better psychosocial outcomes both following completion or withdrawal from donation.

U2 - 10.1111/jorc.12276

DO - 10.1111/jorc.12276

M3 - Article

SN - 1755-6678

VL - 45

SP - 171

EP - 184

JO - Journal of Renal Care

JF - Journal of Renal Care

IS - 3

ER -

Key experiences of primary social groups in Unspecified Kidney Donation

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