Exploring the Diagnostic Experiences of Women with Autism in Adulthood: A Narrative Synthesis of Qualitative Research (2020-2024)

Autistic women frequently encounter delayed diagnoses, misdiagnosis, stigma, and inadequate support, as highlighted by previous research (Kelly et al., 2024). Recent increased awareness of gender differences in autism prompted this narrative review, synthesising 11 qualitative studies from September 2020 to October 2024 to explore recent qualitative research on the diagnostic experiences of autistic women diagnosed in adulthood. The findings reaffirm persistent pre- and post-diagnostic challenges and biases, while uncovering new insights: diagnosis often follows a crisis, involves active ‘de-masking’ during clinical assessments, and is increasingly driven by women’s self-advocacy to counter clinician limitations. These results suggest there may exist gaps in diagnostic processes and support services, highlighting a potential need for enhanced clinician training and comprehensive post-diagnostic support. Clinical implications and future recommendations are discussed.