Abstract
<jats:sec><jats:title>Objective:</jats:title><jats:p> To explore the experiences of adult stroke survivors and their parent carers. </jats:p></jats:sec><jats:sec><jats:title>Design:</jats:title><jats:p> Qualitative methodology: interpretative phenomenological analysis. </jats:p></jats:sec><jats:sec><jats:title>Setting:</jats:title><jats:p> Six residential areas across England and south Wales. </jats:p></jats:sec><jats:sec><jats:title>Participants:</jats:title><jats:p> Six adult stroke survivors (aged 27–46), six mothers (aged 59–76) and five fathers (aged 55–76). </jats:p></jats:sec><jats:sec><jats:title>Method:</jats:title><jats:p> Semi-structured interviews to explore the relationship and interactions between parent and survivor prior to and after a stroke, with opportunities to explore both positive and negative changes. All interviews were transcribed and analysed by a six step interpretative phenomenological analysis process. Survivors, mothers and fathers were analysed as three separate groups and the results were synthesised. </jats:p></jats:sec><jats:sec><jats:title>Results:</jats:title><jats:p> Identical and interconnected themes emerged from the three groups, permitting synthesis into a single organising framework with four superordinate themes capturing the key issues for all three groups. The four superordinate themes were: ‘emotional turmoil’; ‘significance of parents’; ‘negotiating independence versus dependence’ and ‘changed relationships’. </jats:p></jats:sec><jats:sec><jats:title>Conclusions:</jats:title><jats:p> Parents reported adjusting to caring with relative ease. Survivors did not adjust to being cared for with such ease and felt positioned in a child role. Balancing independence and dependence was a challenge for survivors and parents and is considered within a systemic theory framework. Implications for service developments and guidelines are considered. </jats:p></jats:sec>
Original language | English |
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Pages (from-to) | 272-280 |
Number of pages | 0 |
Journal | Clinical Rehabilitation |
Volume | 27 |
Issue number | 3 |
Early online date | 30 Jul 2012 |
DOIs | |
Publication status | Published - Mar 2013 |