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European Society of Intensive Care Medicine guidelines on end of life and palliative care in the intensive care unit

  • Jozef Kesecioglu*
  • , Katerina Rusinova
  • , Daniela Alampi
  • , Yaseen M. Arabi
  • , Julie Benbenishty
  • , Dominique Benoit
  • , Carole Boulanger
  • , Maurizio Cecconi
  • , Christopher Cox
  • , Marjel van Dam
  • , Diederik van Dijk
  • , James Downar
  • , Nikolas Efstathiou
  • , Ruth Endacott
  • , Alessandro Galazzi
  • , Fiona van Gelder
  • , Rik T. Gerritsen
  • , Armand Girbes
  • , Laura Hawyrluck
  • , Margaret Herridge
  • Jan Hudec, Nancy Kentish-Barnes, Monika Kerckhoffs, Jos M. Latour, Jan Malaska, Annachiara Marra, Stephanie Meddick-Dyson, Spyridon Mentzelopoulos, Mervyn Mer, Victoria Metaxa, Andrej Michalsen, Rajesh Mishra, Giovanni Mistraletti, Margo van Mol, Rui Moreno, Judith Nelson, Andrea Ortiz Suñer, Natalie Pattison, Tereza Prokopova, Kathleen Puntillo, Kathryn Puxty, Samah Al Qahtani, Lukas Radbruch, Emilio Rodriguez-Ruiz, Ron Sabar, Stefan J. Schaller, Shahla Siddiqui, Charles L. Sprung, Michele Umbrello, Marco Vergano, Massimo Zambon, Marieke Zegers, Michael Darmon, Elie Azoulay
*Corresponding author for this work
  • Utrecht University
  • Charles University
  • University of Rome La Sapienza
  • King Saud Bin Abdulaziz University for Health Sciences and King Abdullah International Medical Research Center
  • Hebrew University of Jerusalem
  • Ghent University
  • University of Exeter
  • Humanitas University
  • IRCCS Istituto Clinico Humanitas - Rozzano (Milano)
  • Duke University
  • University of Ottawa
  • Bruyère Research Institute
  • University of Birmingham
  • National Institute for Health and Care Research
  • University of Udine
  • Gelderland Valley Hospital
  • Medical Centre Leeuwarden
  • AmsterdamUMC Location VUmc
  • Toronto Western Hospital
  • University Health Network
  • University of Toronto
  • Masaryk University
  • Université Paris Cité
  • Curtin University
  • Fudan University
  • University of Naples
  • University of Hull
  • National and Kapodistrian University of Athens
  • University of the Witwatersrand
  • King's College Hospital NHS Foundation Trust
  • King's College London
  • Konstanz Hospital
  • Shaibya Comprehensive Care Clinic
  • University of Milan
  • Legnano Hospital
  • Erasmus University Rotterdam
  • Hospital São José
  • NOVA University Lisbon
  • University of Beira Interior
  • Cornell University
  • Hospital Arnau de Vilanova
  • Universidad Católica de Valencia San Vicente Martir
  • University of Hertfordshire
  • Imperial College Healthcare NHS Trust
  • University of California at San Francisco
  • Glasgow Royal Infirmary
  • University of Glasgow
  • University of Bonn
  • University Clinic Hospital of Santiago de Compostela (CHUS)
  • Health Research Institute of Santiago de Compostela (IDIS)
  • University of Santiago de Compostela
  • Sabar Health
  • Charité Universitätsmedizin Berlin
  • Harvard University
  • Azienda Sanitaria Ospedaliera Molinette San Giovanni Battista Di Torino
  • Anesthesia and Intensive Care Ospedale “Uboldo”
  • Radboud University Nijmegen

Research output: Contribution to journalArticlepeer-review

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Abstract

The European Society of Intensive Care Medicine (ESICM) has developed evidence-based recommendations and expert opinions about end-of-life (EoL) and palliative care for critically ill adults to optimize patient-centered care, improving outcomes of relatives, and supporting intensive care unit (ICU) staff in delivering compassionate and effective EoL and palliative care. An international multi-disciplinary panel of clinical experts, a methodologist, and representatives of patients and families examined key domains, including variability across countries, decision-making, palliative-care integration, communication, family-centered care, and conflict management. Eight evidence-based recommendations (6 of low level of evidence and 2 of high level of evidence) and 19 expert opinions were presented. EoL legislation and the importance of respecting the autonomy and preferences of patients were given close attention. Differences in EoL care depending on country income and healthcare provision were considered. Structured EoL decision-making strategies are recommended to improve outcomes of patients and relatives, as well as staff satisfaction and mental health. Early integration of palliative care and the use of standardized tools for symptom assessment are suggested for patients at high risk of dying. Communication training for ICU staff and printed communication aids for families are advocated to improve outcomes and satisfaction. Methods for enhancing family-centeredness of care include structured family conferences and culturally sensitive interventions. Conflict-management protocols and strategies to prevent burnout among healthcare professionals are also considered. The work done to develop these guidelines highlights many areas requiring further research.

Original languageEnglish
Pages (from-to)1740-1766
Number of pages27
JournalIntensive Care Medicine
Volume50
Issue number11
Early online date3 Oct 2024
DOIs
Publication statusPublished - Nov 2024

ASJC Scopus subject areas

  • Critical Care and Intensive Care Medicine

Keywords

  • Communication
  • Conflict management
  • Cultural variations
  • Decision-making
  • End of life
  • Family-centered care
  • GRADE
  • Intensive care unit
  • Palliative care

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