Ethics and equity in research priority-setting: stakeholder engagement and the needs of disadvantaged groups.

Soumyadeep Bhaumik; Sangeeta Rana; Chante Karimkhani; Vivian Welch; Rebecca Armstrong; Kevin Pottie; Robert Dellavalle; Purushottam Dhakal; Sandy Oliver; Damian K. Francis; Mona Nasser; Sally Crowe; Baran Aksut; Roberto D. Amico

doi:10.20529/IJME.2015.030

Ethics and equity in research priority-setting: stakeholder engagement and the needs of disadvantaged groups.

Soumyadeep Bhaumik, Sangeeta Rana, Chante Karimkhani, Vivian Welch, Rebecca Armstrong, Kevin Pottie, Robert Dellavalle, Purushottam Dhakal, Sandy Oliver, Damian K. Francis, Mona Nasser, Sally Crowe, Baran Aksut, Roberto D. Amico

Faculty of Health

University of Modena and Reggio Emilia

Research output: Contribution to journal › Article › peer-review

Abstract

A transparent and evidence-based priority-setting process promotes the optimal use of resources to improve health outcomes. Decision-makers and funders have begun to increasingly engage representatives of patients and healthcare consumers to ensure that research becomes more relevant. However, disadvantaged groups and their needs may not be integrated into the priority-setting process since they do not have a "political voice" or are unable to organise into interest groups. Equitable priority-setting methods need to balance patient needs, values, experiences with population-level issues and issues related to the health system.

Original language	English
Pages (from-to)	110-113
Number of pages	0
Journal	Indian J Med Ethics
Volume	12
Issue number	2
DOIs	https://doi.org/10.20529/IJME.2015.030
Publication status	Published - 2015

Keywords

Community Participation
Decision Making
Health Equity
Health Priorities
Health Services Needs and Demand
Humans
India
Public Health
Research
Vulnerable Populations

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.20529/IJME.2015.030

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Bhaumik, S., Rana, S., Karimkhani, C., Welch, V., Armstrong, R., Pottie, K., Dellavalle, R., Dhakal, P., Oliver, S., Francis, D. K., Nasser, M., Crowe, S., Aksut, B., & Amico, R. D. (2015). Ethics and equity in research priority-setting: stakeholder engagement and the needs of disadvantaged groups. Indian J Med Ethics, 12(2), 110-113. https://doi.org/10.20529/IJME.2015.030

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abstract = "A transparent and evidence-based priority-setting process promotes the optimal use of resources to improve health outcomes. Decision-makers and funders have begun to increasingly engage representatives of patients and healthcare consumers to ensure that research becomes more relevant. However, disadvantaged groups and their needs may not be integrated into the priority-setting process since they do not have a {"}political voice{"} or are unable to organise into interest groups. Equitable priority-setting methods need to balance patient needs, values, experiences with population-level issues and issues related to the health system.",

keywords = "Community Participation, Decision Making, Health Equity, Health Priorities, Health Services Needs and Demand, Humans, India, Public Health, Research, Vulnerable Populations",

author = "Soumyadeep Bhaumik and Sangeeta Rana and Chante Karimkhani and Vivian Welch and Rebecca Armstrong and Kevin Pottie and Robert Dellavalle and Purushottam Dhakal and Sandy Oliver and Francis, {Damian K.} and Mona Nasser and Sally Crowe and Baran Aksut and Amico, {Roberto D.}",

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doi = "10.20529/IJME.2015.030",

language = "English",

volume = "12",

pages = "110--113",

journal = "Indian J Med Ethics",

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Bhaumik, S, Rana, S, Karimkhani, C, Welch, V, Armstrong, R, Pottie, K, Dellavalle, R, Dhakal, P, Oliver, S, Francis, DK, Nasser, M, Crowe, S, Aksut, B & Amico, RD 2015, 'Ethics and equity in research priority-setting: stakeholder engagement and the needs of disadvantaged groups.', Indian J Med Ethics, vol. 12, no. 2, pp. 110-113. https://doi.org/10.20529/IJME.2015.030

TY - JOUR

T1 - Ethics and equity in research priority-setting: stakeholder engagement and the needs of disadvantaged groups.

AU - Bhaumik, Soumyadeep

AU - Rana, Sangeeta

AU - Karimkhani, Chante

AU - Welch, Vivian

AU - Armstrong, Rebecca

AU - Pottie, Kevin

AU - Dellavalle, Robert

AU - Dhakal, Purushottam

AU - Oliver, Sandy

AU - Francis, Damian K.

AU - Nasser, Mona

AU - Crowe, Sally

AU - Aksut, Baran

AU - Amico, Roberto D.

PY - 2015

Y1 - 2015

N2 - A transparent and evidence-based priority-setting process promotes the optimal use of resources to improve health outcomes. Decision-makers and funders have begun to increasingly engage representatives of patients and healthcare consumers to ensure that research becomes more relevant. However, disadvantaged groups and their needs may not be integrated into the priority-setting process since they do not have a "political voice" or are unable to organise into interest groups. Equitable priority-setting methods need to balance patient needs, values, experiences with population-level issues and issues related to the health system.

AB - A transparent and evidence-based priority-setting process promotes the optimal use of resources to improve health outcomes. Decision-makers and funders have begun to increasingly engage representatives of patients and healthcare consumers to ensure that research becomes more relevant. However, disadvantaged groups and their needs may not be integrated into the priority-setting process since they do not have a "political voice" or are unable to organise into interest groups. Equitable priority-setting methods need to balance patient needs, values, experiences with population-level issues and issues related to the health system.

KW - Community Participation

KW - Decision Making

KW - Health Equity

KW - Health Priorities

KW - Health Services Needs and Demand

KW - Humans

KW - India

KW - Public Health

KW - Research

KW - Vulnerable Populations

U2 - 10.20529/IJME.2015.030

DO - 10.20529/IJME.2015.030

M3 - Article

SN - 0975-5691

VL - 12

SP - 110

EP - 113

JO - Indian J Med Ethics

JF - Indian J Med Ethics

IS - 2

ER -

Ethics and equity in research priority-setting: stakeholder engagement and the needs of disadvantaged groups.

Abstract

Keywords

UN SDGs

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