TY - JOUR
T1 - EMpowerment of PArents in THe Intensive Care
T2 - A multicentre validation study in Japan
AU - Matsuishi, Yujiro
AU - Manning, Joseph C.
AU - Hoshino, Haruhiko
AU - Enomoto, Yuki
AU - Munekawa, Ikkei
AU - Ikebe, Ryo
AU - Tani, Masanori
AU - Tanaka, Naoko
AU - Mathis, Bryan J.
AU - Shimojo, Nobutake
AU - Inoue, Yoshiaki
AU - Latour, Jos M.
N1 - Publisher Copyright:
© 2024 Australian College of Critical Care Nurses Ltd
PY - 2025/1
Y1 - 2025/1
N2 - Background: The importance of assessing family satisfaction in paediatric intensive care units (PICUs) is becoming increasingly recognised. The survey, EMpowerment of Parents in THe Intensive Care “EMPATHIC-30”, was designed to assess family satisfaction and has been translated and implemented in several countries but not yet in Japan. Objectives: The objective of this study was to translate, culturally adapt, and validate the EMPATHIC-30 questionnaire in Japanese and to identify potential factors for family-centred care satisfaction. Methods: We translated and adapted for patient-reported outcome measures via a 10-step process outlined by the Principles of Good Practice. Four paediatric PICUs in Japan participated in the validation study, and the parental enrolment criterion was a child with a PICU stay of >24 h. Reliability was measured by Cronbach's α, and congruent validity was tested with overall satisfaction-with-care scales by correlation analysis. Multivariate linear regression modelling was conducted to identify factors related to each domain of the Japanese EMPATHIC-30. Results: A total of 163 parents (mean age: 31.9 ± 5.4 years; 81% were mothers) participated. The five domains of the Japanese EMPATHIC-30 showed high reliability (α = 0.87 to 0.97) and congruent validity, demonstrating high correlations with overall satisfaction in nurses (r = 0.75) and doctors (r = 0.76). Multivariate modelling found that elective admission, mechanical ventilation, and parents who had experience of a family member in an adult intensive care unit had higher satisfaction scores in all five domains (p < 0.05). Moreover, Buddhists assigned higher satisfaction scores in the Care and Treatment domain (p = 0.03). Conclusions: The Japanese EMPATHIC-30 questionnaire has demonstrated adequate reliability and validity measures. We also identified that elective admission, mechanical ventilation, and having previous adult intensive care unit experience of a family member were factors in assigning higher scores for all satisfaction domains. PICU clinicians need to be cognisant of ethical, cultural, and religious factors relating to the critically ill child and their family.
AB - Background: The importance of assessing family satisfaction in paediatric intensive care units (PICUs) is becoming increasingly recognised. The survey, EMpowerment of Parents in THe Intensive Care “EMPATHIC-30”, was designed to assess family satisfaction and has been translated and implemented in several countries but not yet in Japan. Objectives: The objective of this study was to translate, culturally adapt, and validate the EMPATHIC-30 questionnaire in Japanese and to identify potential factors for family-centred care satisfaction. Methods: We translated and adapted for patient-reported outcome measures via a 10-step process outlined by the Principles of Good Practice. Four paediatric PICUs in Japan participated in the validation study, and the parental enrolment criterion was a child with a PICU stay of >24 h. Reliability was measured by Cronbach's α, and congruent validity was tested with overall satisfaction-with-care scales by correlation analysis. Multivariate linear regression modelling was conducted to identify factors related to each domain of the Japanese EMPATHIC-30. Results: A total of 163 parents (mean age: 31.9 ± 5.4 years; 81% were mothers) participated. The five domains of the Japanese EMPATHIC-30 showed high reliability (α = 0.87 to 0.97) and congruent validity, demonstrating high correlations with overall satisfaction in nurses (r = 0.75) and doctors (r = 0.76). Multivariate modelling found that elective admission, mechanical ventilation, and parents who had experience of a family member in an adult intensive care unit had higher satisfaction scores in all five domains (p < 0.05). Moreover, Buddhists assigned higher satisfaction scores in the Care and Treatment domain (p = 0.03). Conclusions: The Japanese EMPATHIC-30 questionnaire has demonstrated adequate reliability and validity measures. We also identified that elective admission, mechanical ventilation, and having previous adult intensive care unit experience of a family member were factors in assigning higher scores for all satisfaction domains. PICU clinicians need to be cognisant of ethical, cultural, and religious factors relating to the critically ill child and their family.
KW - Children
KW - Culture
KW - Family nursing
KW - Paediatric intensive care
KW - Parents
KW - Patient satisfaction
UR - https://www.scopus.com/pages/publications/85198164811
UR - https://pearl.plymouth.ac.uk/nm-research/851/
U2 - 10.1016/j.aucc.2024.05.009
DO - 10.1016/j.aucc.2024.05.009
M3 - Article
C2 - 38981794
AN - SCOPUS:85198164811
SN - 1036-7314
VL - 38
JO - Australian Critical Care
JF - Australian Critical Care
IS - 1
M1 - 101072
ER -