Developing a Children's Research Advisory group

Background
Patient and Public Involvement (PPI) is an active partnership between researchers, patients, and the public, empowering them to influence and shape research (NIHR 2024). The participation of children in the research process is continuously evolving and involving them at all stages can lead to better research (Preston et al 2023). This can address ethical considerations by consulting children and implementing methods that are age-appropriate for the participant group (Brady et al., 2023).
Aims of paper
This case study outlines the creation of a Children’s Research Advisory Group (CRAG) that will be consulted to help develop child-appropriate methods for a doctoral research project.
Methodological discussion
Developing the CRAG required careful planning to ensure meaningful participation. Ethical considerations were prioritised, and the university's ethics committee were consulted. Encompassing a thorough understanding of all relevant policies and procedures and factors such as consent, safeguarding, and confidentiality throughout the engagement process was key. Local schools were contacted through headteachers (gatekeepers), and one school expressed interest. Initial sessions were designed with the children's ages and developmental stages in mind to include creative engagement methods through books and a Playmobil hospital. Information and consent forms for parents were created to be distributed by the gatekeepers, who play a crucial role in the progress of the CRAG progress.
Conclusion
This case study has explored the thorough planning needed for PPI with young children. Central to this are ethical considerations and creative methods of engagement. These methods must be carefully designed to align with their developmental needs and ensure their voices are effectively heard in research development.