A roadmap to develop dementia research capacity and capability in Pakistan: A model for low‐ and middle‐income countries

Iracema Leroi*, Nasim Chaudhry, Anna Daniel, Ross Dunne, Saima Eman, Nicolas Farina, Sana e.Zehra Haidry, Nusrat Husain, H Jafri, S Karim, Tayyeba Kiran, M Khan, Q Khan, Shakil Jehangir Malik, Rakhshi Memon, Mowadat Hussain Rana, Ambily Sathish, Saima Sheikh, Asad Tamizudin, Sehrish TofiqueZainab Zadeh, Yasser Abbasi, Sadaf Eitesam, M Jafri, Aysha Khaliq, R Karim, Saima Nafis, Mohammad Wasay

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

Abstract

<jats:title>Abstract</jats:title><jats:sec><jats:title>Objective</jats:title><jats:p>To produce a strategic roadmap for supporting the development of dementia research in Pakistan.</jats:p></jats:sec><jats:sec><jats:title>Background</jats:title><jats:p>While global research strategies for dementia research already exist, none is tailored to the specific needs and challenges of low‐ and middle‐income countries (LMIC) like Pakistan.</jats:p></jats:sec><jats:sec><jats:title>Methods</jats:title><jats:p>We undertook an iterative consensus process with lay and professional experts to develop a Theory of Change‐based strategy for dementia research in Pakistan. This included Expert Reference Groups (ERGs), strategic planning techniques, a “research question” priority survey, and consultations with Key Opinion Leaders.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>We agreed on ten principles to guide dementia research in Pakistan, emphasizing pragmatic, resource sparing, real‐world approaches to support people with dementia, both locally and internationally. Goals included capacity/capability building. Priority research topics included raising awareness and understanding of dementia, and improving quality of life.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>This roadmap may be a model for other LMIC health ecosystems with emerging dementia research cultures.</jats:p></jats:sec>
Original languageEnglish
Pages (from-to)939-952
Number of pages0
JournalAlzheimer's &amp; Dementia: Translational Research &amp; Clinical Interventions
Volume5
Issue number1
DOIs
Publication statusPublished - Jan 2019

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